We are looking for 6 new members to join our Child and Adolescent Cystic Fibrosis Consumer Reference Group of WA. It is a formalised group of parents and patients with cystic fibrosis brought together to:
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- Support the development of partnerships between consumers, researchers, research organizations and clinical staff.
- Provide a consumer perspective to both clinical and research aspects of cystic fibrosis.
- Advise about research and clinical priorities, practice and policies.
- Enhance the quality and relevance of research and clinical activities through consumer participation.
We are also looking for 2 members to join our Scientific Management Committee. The role of this Committee is to implement the research priorities of the AREST CF collaboration through activities such as:
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- Progress review of current projects, including the Early Surveillance Program.
- Review and approval of new projects, collaborations and Chief Investigators.
- Review and approval of requests for access to AREST CF biological samples/data.
- Progress review of research outputs, including publications, conference presentations and grant applications.
- Monitor and align research efforts to ensure research will lead to meaningful benefits for patients in clinical practice.
For more information or to express an interest in joining either of these groups please visit the AREST CF website by July 24 2015.