Six leading health organisations have joined a new coalition to end rheumatic heart disease in Australia.
The END RHD Coalition brings together as founding members the Australian Medical Association, Australian Heart Foundation, National Aboriginal Community Controlled Health Organisation (NACCHO), RHDAustralia, Aboriginal Medical Services Alliance Northern Territory (AMSANT) and the Centre for Research Excellence to End RHD (the END RHD CRE) based at The Kids Research Institute Australia. Other organisations will be invited to join in due course.
The Kids Director and head of the END RHD CRE Professor Jonathan Carapetis said the new coalition was a major step forward in tackling a condition that disproportionately affected Indigenous Australians.
"Rheumatic heart disease is an entirely preventable, yet devastating condition," Professor Carapetis said. "It is caused by a simple bacterial throat infection, which left untreated can result in permanent damage to the heart, heart failure and stroke.
"Internationally, rheumatic heart disease is a disease of developing nations, yet in Australia we have some of the highest rates in the world, occurring almost exclusively in the Aboriginal and Torres Strait Islander population."
"One in 43 Indigenous people living in remote and rural areas have rheumatic heart disease. This country has the largest disparity in cardiovascular disease outcomes in the world and it is simply unacceptable."
"RHD is a disease of poverty, overcrowding and inequality and addressing these issues is essential. We need new solutions to prevent and treat the infections that lead to ARF and RHD, and to reduce suffering and death from RHD itself, but we will only be treading water if we don't also address the key social determinants of the disease."
"The END RHD CRE is a nationally funded research collaboration that aims to identify a set of costed, stepwise, evidence based interventions to end the disparity in rheumatic heart disease once and for all," Professor Carapetis said.
The Coalition will be the critical link between the research of the END RHD CRE and the health workers, families and organisations that will do the hard work to end RHD in Australia. Together, the Coalition partners will recommend immediate actions, as well as to develop a complete Endgame Strategy to be presented to Government in 2020.
"The new Coalition recognises the importance of diverse stakeholders in finding solutions to inform the National Endgame Strategy," Professor Carapetis said.
'This coalition complements our research agenda to ensure that the Endgame Strategy is practical, acceptable and appropriate to communities, clinicians and government'.
The END RHD Coalition was announced at the launch of the Australian Medical Association Report Card on Aboriginal and Torres Strait Islander Health on rheumatic heart disease in Darwin.
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Media contact:
Jasmine Raisbeck, Senior Communications Officer, The Kids Research Institute Australia
08 9489 7635 or 0437 575 875 or jasmine.raisbeck@telethonkids.org.au
About The Kids Research Institute Australia:
The Kids Research Institute Australia is one of the largest, and most successful medical research institutes in Australia, comprising a dedicated and diverse team of more than 500 staff and students.
We've created a bold blueprint that brings together community, researchers, practitioners, policy makers and funders, who share our vision to improve the health and wellbeing of children through excellence in research.
The Institute is headed by leading paediatrician and infectious diseases expert Professor Jonathan Carapetis, with Founding Director Professor Fiona Stanley now Patron.
The Kids is independent and not-for-profit. The majority of funding comes from our success in winning national and international competitive research grants. We also receive significant philanthropic support from corporate Australia and the community.