Citation:
Douglas TA, Pooley JA, Shields L, Stick SM, Branch-Smith C, Australian Respiratory Early Surveillance Team for Cystic F. Early disease surveillance in young children with cystic fibrosis: A qualitative analysis of parent experiences. J Cyst Fibros. 2020.
Keywords:
Children; Cystic fibrosis; Early surveillance; Experiences; Infants; Parents; Preschool; Pulmonary.
Abstract:
Sensitive measures of early lung disease are being integrated into therapeutic trials and clinical practice in cystic fibrosis (CF). The impact of early disease surveillance (EDS) using these novel and often intensive techniques on young children and their families is not well researched.
Early disease surveillance in young children with cystic fibrosis: A qualitative analysis of parent experiences
Sensitive measures of early lung disease are being integrated into therapeutic trials and clinical practice in cystic fibrosis (CF). The impact of early disease surveillance (EDS) using these novel and often intensive techniques on young children and their families is not well researched.