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People with Cerebral Palsy and Their Family's Preferences about Genomics Research

The goal of this study was to understand individuals with cerebral palsy (CP) and their family's attitudes and preferences to genomic research, including international data sharing and biobanking.

Citation:
Wilson YA, McIntyre S, Waight E, Thornton M, Baynam G…, et al. People with Cerebral Palsy and Their Family's Preferences about Genomics Research. Public Health Genomics. 2021.

Keywords:
Biobanking; Cerebral palsy; Data sharing; Genome research; Participant perspectives

Abstract:
The goal of this study was to understand individuals with cerebral palsy (CP) and their family's attitudes and preferences to genomic research, including international data sharing and biobanking.