Preferred health outcome states following treatment for pulmonary exacerbations of cystic fibrosis

Treatment for pulmonary exacerbations of cystic fibrosis (CF) can produce a range of positive and negative outcomes. Understanding which of these outcomes are achievable and desirable to people affected by disease is critical to agreeing to goals of therapy and determining endpoints for trials.

Citation:
McLeod C, Wood J, Mulrennan S, Morey S, Schultz A, Messer M, ……. Blyth CC et al. Preferred health outcome states following treatment for pulmonary exacerbations of cystic fibrosis. J Cyst Fibrosis. 2022.

Keywords:
Cystic fibrosis; Discrete choice experiment; Outcomes; Patient preferences; Patient-reported outcome measures

Abstract:
Treatment for pulmonary exacerbations of cystic fibrosis (CF) can produce a range of positive and negative outcomes. Understanding which of these outcomes are achievable and desirable to people affected by disease is critical to agreeing to goals of therapy and determining endpoints for trials.