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Estimating the true number of people with acute rheumatic fever and rheumatic heart disease from two data sources using capture-recapture methodology

In Australia, accurate case ascertainment of acute rheumatic fever (ARF) and rheumatic heart disease (RHD) diagnoses for disease surveillance and control purposes requires the use of multiple data sources, including RHD registers and hospitalisation records. Despite drawing on multiple data sources, the true burden of ARF/RHD is likely to be underestimated.

Citation:
Thandrayen J, Stacey I, Oliver J, Francia C, Katzenellenbogen JM, Wyber R. Estimating the true number of people with acute rheumatic fever and rheumatic heart disease from two data sources using capture-recapture methodology. Aust Health Rev. 2024;49.

Keywords:
Statistics; data; epidemiology; rheumatic heart disease; retrospective studies

Abstract:
In Australia, accurate case ascertainment of acute rheumatic fever (ARF) and rheumatic heart disease (RHD) diagnoses for disease surveillance and control purposes requires the use of multiple data sources, including RHD registers and hospitalisation records. Despite drawing on multiple data sources, the true burden of ARF/RHD is likely to be underestimated.