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What I Wish I Had Known: Examining Parent Accounts of Managing the Health of Their Child With Intellectual Disability

Appropriate support for the health of children with an intellectual disability by parents and healthcare professionals is pivotal, given the high risk of chronic conditions. However, there is limited research that has collected important insights from parents on their learnings for supporting their child's evolving healthcare needs.

Citation:
Nevill T, Keely J, Skoss R, Collins R, Langdon K, Mills J, Downs J. What I Wish I Had Known: Examining Parent Accounts of Managing the Health of Their Child With Intellectual Disability. Health Expect. 2025;28(1).

Keywords:
Intellectual disability; chronic conditions; health literacy; health management; parent perspective; young people

Abstract:
Appropriate support for the health of children with an intellectual disability by parents and healthcare professionals is pivotal, given the high risk of chronic conditions. However, there is limited research that has collected important insights from parents on their learnings for supporting their child's evolving healthcare needs.