Investigators
Dr Melissa Licari, Prof Valsamma Eapen, Dr Gail Alvares, Dr Lisa Curtis-Wendlandt, Prof Russell Dale, Dr Danielle Dowman, Prof Jenny Downs, Mandy Maysey, Dr Amanda Maxwell, Matthew McQueen, Dr Shannon Newman, Rosita Sunna, Prof Andrew Whitehouse
What is Impact for Tourette's?
Impact for Tourette’s is Australia’s first national project evaluating the unmet needs of people with Tourette syndrome and other tic conditions. It consists of a national survey that will evaluate challenges related to obtaining a diagnosis, access to therapy and funding, and impacts on daily living, education, employment, mental health, and quality of life.
To Participate
We are currently inviting people 18 years or older who have a tic condition (e.g., Tourette syndrome, chronic tic disorder, transient tic disorder, functional neurological disorder) or are a parent/caregiver/partner of a person with a tic condition to participate.
Participation involves completing an anonymous online survey that will take 20-30 minutes to complete.
You can access the survey here: https://redcap.link/impact-for-tourettes
Importance
Awareness of the impacts of tic conditions is currently limited in the medical, education, and government systems in Australia. This needs to change and to do this, we need your help. Together, we will collect vital evidence needed to shine a light on the significant challenges associated with tic conditions and the gaps that exist in support and servicing. In doing so, we can then implement solutions to help improve the lives of people with Tourette syndrome and other tic conditions.
Collaborators
Tourette Syndrome Association of Australia, The University of New South Wales, The University of Sydney and other key stakeholders from around Australia.
