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Each family needs to select the appropriate types and levels of activity that suit their own individual needs and circumstances.
Through InterRett we collect information on individuals with Rett syndrome on a global level. If you are a participant you can complete your questionnaire here.
News & Events
High Tea for Rett Syndome at Caversham HouseThanks for everyone who have contributed to and participated in this wonderful event to raise much needed funds to support Rett Syndrome research!
News & Events
The Silent AngelTaylor is a remarkable young woman with Rett Syndrome who is leading an active country life with the support of her family and the local community.
Research
The CDKL5 disorder is an independent clinical entity associated with early-onset encephalopathyThe clinical understanding of the CDKL5 disorder remains limited, with most information being derived from small patient groups seen at individual centres.
Research
Breastfeeding in the first hour of life protects against neonatal mortalityBreastfeeding within the first hour of life has been shown to reduce high neonatal mortality by 22%.
Research
Efficacy of acute myeloid leukemia therapy without stem-cell transplantation in a child with blastic plasmacytoid dendritic cell neoplasmOur case demonstrates that AML therapy, without HSCT, can be sufficient to treat this rare disease in children.
Research
Are women with major depression in pregnancy identifiable in population health data?Although record linkage of routinely collected health datasets is a valuable research resource, most datasets are established for administrative purposes and...
Research
Association between pre-eclampsia and locally derived traffic-related air pollution: A retrospective cohort studyPre-eclampsia is a common complication of pregnancy and is a major cause of fetal maternal mortality and morbidity.
Research
Low-dose oral interferon alpha as prophylaxis against viral respiratory illness: A double-blind, parallel controlled trialA double-blind, placebo-controlled clinical trial was conducted investigating the use of low-dose oral interferon alpha for preventing acute viral...