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Developmental and epileptic encephalopathy (DEE) conditions are rare, and most have a genetic cause.
Research
“I don't really exist here”: A reflexive thematic analysis of dissociative symptoms described by adolescents and their parents and cliniciansDissociative symptoms are associated with a range of negative outcomes, yet little is understood about how adolescents experience dissociation in their daily lives. This study aimed to describe adolescents’ dissociative symptoms from the perspective of adolescents, their parents, and their treating clinicians.
A letter to the WA public from Jonathan Carapetis and Fiona Stanley.
Research
Coping Compass: co-designing a brief online positive psychology programme for youth with chronic conditionsThis article presents a case study of a 12-month co-design process with young people (16–25) living with chronic health conditions to create an online, self-guided intervention based on positive psychology. Following an established framework for co-designing with vulnerable consumers, the co-design process was designed with stakeholders to promote accessibility and maximise youth engagement in the design of the programme.
Research
Improving Outcome Reporting in Paediatric Airway Management in Clinical Trials (IMPACT): A Study Protocol for Core Outcomes and Clinical EndpointsAlthough clinical trials are fundamental to advancing evidence-based practice, significant heterogeneity in outcome reporting poses a considerable challenge to the validity of systematic reviews. This inconsistency impedes the ability to compare, synthesise and interpret research findings effectively. In the field of paediatric airway management, this issue is particularly relevant because of the low incidence of critical events and the related high morbidity and mortality. The issue of inadequate and variable outcome reporting in clinical trials has been widely acknowledged, necessitating initiatives to enhance the quality of future research.
Research
Topical Lidocaine During Airway Manipulation in Pediatric Anesthesia: A Systematic Review and Meta-AnalysisLidocaine is widely used in pediatric anesthesia for airway topicalization to modulate undesirable airway and circulatory reflexes, yet its effectiveness remains unclear. Therefore, we aimed to perform a meta-analysis evaluating the impact of topical lidocaine on respiratory adverse events in children undergoing airway management.
The The Kids Cancer Centre is at the cutting edge of developing new, safer ways of treating children with cancer using their own immune systems.
At The Kids Research Institute Australia, we've been thinking of the kids for 35 years. We are finding the answers to some of the biggest problems facing the health and wellbeing of children and families. Our Research Themes host defined programs of work where the Institute has clear strengths and capacity. Our overarching commitment to First Nations Health and Equity is embedded across all our work and features as a core consideration in each Research Theme. The Institute is committed to ending the disparity in health and wellbeing outcomes between Aboriginal and non-Aboriginal kids and families.
A public health campaign to raise awareness about the dangers of chronic wet cough in Aboriginal children is helping to improve detection, diagnosis and management of the condition.
A world-first program for babies with differences in their social and communication skills is aiming to help parents and caregivers better understand the different ways their child communicates.