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Family Functioning in Families with a Child with Down syndrome: A Mixed Methods Approach...
The purpose of this study was to describe qualitatively the experience of parenting for mothers of a child with Down syndrome.
The aim of this paper was to describe the meaning of wellbeing for children and youth with disabilities from their perspective.
The purpose of this study was to describe qualitatively the experience of parenting for mothers of a child with Down syndrome and to explore spirituality.
Leisure participation for school-aged children with Down syndrome.
While individual diseases are rare, as a group, rare diseases are common. Recent estimates suggest that between 3% and 6% of the world’s population are affected by rare disease.
Our vision is to increase awareness and improve outcomes for children with movement disorders and other neurodevelopmental conditions impacting on motor function.
We aim to ensure that high quality outcome measures are available to evaluate treatments and services for children with disability rigorously. We aim to translate our research into resources to support families, carers and clinicians.
The Sibling Project focuses on the wellbeing, relationships and needs of children, adolescents and emerging adults who have a sibling with a developmental disability.
Developmental and epileptic encephalopathy (DEE) conditions are rare, and most have a genetic cause.