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Showing results for "autism"

Research

Parent Child Assistance Program - A Pilot Study in Perth

Martyn Amy Symons Finlay-Jones B.A. (Hons) PhD. BPsych(Hons), MPsych(Clinical), MHealthEcon, PhD (Clin Psych) Honorary Research Associate Head, Early

Research

Evaluation of Children's Centres in South Australia

Yasmin Harman-Smith BA, BHlthSc(Hons), PhD Head, Early Years Systems Evidence; Head, Tenders Support Unit Yasmin.harman-smith@thekids.org.au Head,

Research

Infant and Early Childhood Sleep

Self-regulatory difficulties in infants (difficulty soothing and sleeping) tells us that the infant may be at risk of developing a range of physical and mental health difficulties in later life.

Helping kids be kids

Discover the stories of children whose lives have been impacted by Telethon Kids Institute research.

Research

Interobserver Agreement When Diagnosing Hypoventilation in Children With Neuromuscular Disorders

Neuromuscular disorders can lead to nocturnal hypoventilation. Accurate diagnosis of hypoventilation is imperative to guide treatment decisions. This study determined interobserver agreement for a number of definitions of nocturnal hypoventilation in children and adolescents with neuromuscular disorders.

Research

Coping Compass: co-designing a brief online positive psychology programme for youth with chronic conditions

This article presents a case study of a 12-month co-design process with young people (16–25) living with chronic health conditions to create an online, self-guided intervention based on positive psychology. Following an established framework for co-designing with vulnerable consumers, the co-design process was designed with stakeholders to promote accessibility and maximise youth engagement in the design of the programme. 

Research

Novel approaches to measuring cognition in individuals with severe to profound functional impairment: A pilot study in SCN2A-related disorder

Valid clinical outcome assessments with the ability to capture meaningful aspects of neurodevelopment for individuals with neurogenetic conditions associated with profound functional impairments are lacking, yet critical for clinical care and clinical trial readiness.

News & Events

Genetic analysis reveals range of Rett syndrome

The first comprehensive analysis of the clinical effects of genetic mutations involved in Rett syndrome

Research

A Family's Journey at JHC: Analyses of routinely collected data

Desiree Silva MBBS, FRACP, MPH, PhD Co-Director, ORIGINS desiree.silva@thekids.org.au Co-Head, The ORIGINS Project Professor Desiree Silva is