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News & Events
Celebrating 35 years of discovery, impact and hopeLast week, The Kids Research Institute Australia celebrated a remarkable milestone – 35 years of bold ideas, groundbreaking research, and the people who find answers to the big questions about better health outcomes for children and families.
News & Events
Genetic analysis reveals range of Rett syndromeThe first comprehensive analysis of the clinical effects of genetic mutations involved in Rett syndrome
Research
A Family's Journey at JHC: Analyses of routinely collected dataDesiree Silva MBBS, FRACP, MPH, PhD Co-Director, ORIGINS desiree.silva@thekids.org.au Co-Head, The ORIGINS Project Professor Desiree Silva is
Research
ADAPTS: Antibiotic Dysbiosis And Probiotics Trial in infantSDesiree Peter Silva Richmond MBBS, FRACP, MPH, PhD MBBS MRCP(UK) FRACP Co-Director, ORIGINS Head, Vaccine Trials Group desiree.silva@thekids.org.au
Research
Evaluation of the Positive Parenting ProgramIn 2016, the Australian Centre for Child Protection (ACCP) and The Kids Research Institute Australia (The Kids) were engaged to evaluate the implementation and impact of Triple P in South Australia.
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News & Events
CliniKids clinicians rise to the COVID-19 challengeThe CliniKids team has reimagined how allied health services for children with autism spectrum disorder or developmental delays are delivered.
Research
The Feasibility of Personalized Endpoints in Assessing Treatment Outcomes for Rare Diseases: A Pilot Study of Goal Attainment Scaling in SCN2A-AssociatedFor individuals living with rare neurodevelopmental disorders, particularly those who are at the most severe end of the spectrum, standardized outcome measures may lack the sensitivity to capture small but meaningful changes.
Research
Using Focussed Ethnography to Observe and Understand the Actions and Interactions of People With Prader-Willi Syndrome When They Exercise at a Community Gym: A ProtocolExercise for people with Prader-Willi syndrome (PWS) is important for their health and wellbeing and can provide opportunities for community participation. However, they may find it difficult to participate in some contexts, such as community gyms because social and environmental barriers in these settings may compound difficulties caused by physical impairments or intellectual disability.