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Showing results for "autism"
News & Events
Participation key to quality of life for kids with disabilityThe Kids Research Institute Australia researchers have called for a greater focus on creating opportunities for children with disability to participate in the community, after finding a clear link between participation and better quality of life.
News & Events
Critical mass in rare diseases - an innovative internet approachThe internet is emerging as a valuable tool for scientists to gather data for critical research into rare diseases.
Research
Investigating the relationships between sun exposure and cardiometabolic dysfunctionPeter Shelley Jacoby Gorman BA (Hons) MSc BSc (Hons) PhD Biostatistician Honorary Research Associate Peter.Jacoby@thekids.org.au shelley.gorman@
Research
Evaluation of the Child and Family Assessment and Referral Network (CFARN)Yasmin Sandra Mary Harman-Smith Van Diermen Brushe BA, BHlthSc(Hons), PhD BPsych(Hons), PhD (Public Health) Head, Early Years Systems Evidence; Head
Research
Mothers' and Fathers' Work Hours, Child Gender, and Behavior in Middle ChildhoodThis study examined the association between typical parental work hours (including nonemployed parents) and children's behavior in two-parent heterosexual...
Research
Lifestyle and demographic correlates of poor mental health in early adolescenceTo determine the constellation of lifestyle and demographic factors that are associated with poor mental health in an adolescent population.
News & Events
Worrying trends reinforce need for kids health researchChild health experts are concerned by a significant increase in the number of Australian children requiring learning support at school.
Research
Caregiver-reported meaningful change in functional domains for individuals with developmental and epileptic encephalopathy: A convergent mixed-methods designTo investigate how caregivers of children with developmental and epileptic encephalopathy and severe developmental impairments describe meaningful change for functional domains and why it is important.
Research
Pandemic preparedness needs for children with rare diseases and their families: A perspective of COVID-19 experiencesPeople living with rare diseases had a high risk of negative health outcomes due to COVID-19. Pandemic preparedness will ensure best practice procedures and optimal outcomes during future pandemic events. This paper sought to understand the needs of children with rare diseases during the COVID-19 pandemic to inform preparation for future pandemic and disaster events. First, impacts and outcomes from the COVID-19 pandemic on people living with rare disease were identified in the literature.
Research
Efficacy of Health Literacy Interventions for Caregivers of Individuals with Neurodevelopmental and Chronic Conditions: A Rapid ReviewCaregivers of individuals with neurodevelopmental and chronic health conditions require health literacy (HL) skills for the long-term management of these conditions. The aim of this rapid review was to investigate the efficacy of HL interventions for these caregivers.