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Parental Experience of Information and Education Processes Following Diagnosis of Their Infant With Cystic Fibrosis Via Newborn Screening. Abstract
Our first Hopscotch event of 2022 explored exciting new frontiers of cancer treatments happening in the WA Kids Cancer Centre.
Learn more about our people - the dedicated researchers and staff working to address Rett syndrome, CDKL5 and other related disorders.
The ARSS has a Consumer Reference Group to ensure family representation and input into issues relating to the design, management and output of the study.
What a fabulous day we had on Sunday at the HBF Run for a Reason in Perth, where Rett syndrome was extremely well represented!
Venue Information Accommodation Options Contact us THE UNIVERSITY CLUB OF WESTERN AUSTRALIA Hackett Entrance #1, Hackett Drive, Crawley, Western
Learn more about the SenseVest Study at CliniKids
Prenatal exposure to testosterone has been shown to affect fetal brain maturation as well as postnatal cognition and behavior in animal studies.
This University of Western Australia study, being conducted by a PhD student who is working with the Children's Diabetes Centre, aims to determine for the first time whether head out of water immersion or water-based exercise affects blood glucose levels in people with type 1 diabetes.
Structural lung disease and neutrophil-dominated airway inflammation is present from 3 months of age in children diagnosed with cystic fibrosis after newborn screening. We hypothesised that azithromycin, given three times weekly to infants with cystic fibrosis from diagnosis until age 36 months, would reduce the extent of structural lung disease as captured on chest CT scans.