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News & Events

In this blog, Speech Pathology Clinical Lead Aria May and Occupational Therapy Clinical Lead Marie Rodatz share their top tips for making the most of nappy changes to help create more opportunities for connection.

News & Events

Let's play!

This is the start of our CliniKids blog series about play. In this blog, Speech Pathology Clinical Lead Aria May, explains why play is so important for autistic children.

Funding the future of our research

Dr Anthony Bosco, Professor Steve Stick, Professor Andrew Whitehouse, Dr Raelene Endersby and Dr Luke Garratt know how fortunate they are to have

News & Events

Participation key to quality of life for kids with disability

The Kids Research Institute Australia researchers have called for a greater focus on creating opportunities for children with disability to participate in the community, after finding a clear link between participation and better quality of life.

News & Events

Critical mass in rare diseases - an innovative internet approach

The internet is emerging as a valuable tool for scientists to gather data for critical research into rare diseases.

Research

Investigating the relationships between sun exposure and cardiometabolic dysfunction

Peter Shelley Jacoby Gorman BA (Hons) MSc BSc (Hons) PhD Biostatistician Honorary Research Associate Peter.Jacoby@thekids.org.au shelley.gorman@

Research

Evaluation of the Child and Family Assessment and Referral Network (CFARN)

Yasmin Sandra Mary Harman-Smith Van Diermen Brushe BA, BHlthSc(Hons), PhD BPsych(Hons), PhD (Public Health) Head, Early Years Systems Evidence; Head

Research

Factors influencing participation in home, school, and community settings by 6- to 9-year-old children born preterm: a qualitative descriptive study

There is no published information on preterm children's activities and participation during middle childhood, a time when growth and development are characterised by increasing motor, reasoning, self-regulation, social and executive functioning skills. This study explored the health, activities and participation of children born very preterm during middle childhood (6-9 years) from the perspectives of their parents.

Research

Caregiver-reported meaningful change in functional domains for individuals with developmental and epileptic encephalopathy: A convergent mixed-methods design

To investigate how caregivers of children with developmental and epileptic encephalopathy and severe developmental impairments describe meaningful change for functional domains and why it is important.

Research

Perspectives on the essential skills of healthcare decision making in children and adolescents with intellectual disability

Involvement in healthcare decisions is associated with better health outcomes for patients. For children and adolescents with intellectual disability, parents and healthcare professionals need to balance listening to a child's wishes with the responsibility of keeping them safe.