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The Sibling Project focuses on the wellbeing, relationships and needs of children, adolescents and emerging adults who have a sibling with a developmental disability.
Developmental and epileptic encephalopathy (DEE) conditions are rare, and most have a genetic cause.
Guide our sibling research!
Guide our sibling research!
We want to hear from siblings living outside of Australian cities!
Sibling Support and Teen Talk Studies form
The visual representation of Teen Talk study findings
One of the many reasons for setting up the International CDKL5 Disorder Database was to learn more about this condition.