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Research breakthrough gives hope to children with rare and undiagnosed diseasesA complex five-year experiment which cracked the code of a genetic mystery has paved the way for faster and more accurate diagnoses of the most rare and unknown diseases affecting children.
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Pitch perfect projects powered by philanthropyEarlier this week ten emerging researchers took to the stage to pitch their projects to a room full of excited and engaged philanthropists who share our vision of happy, healthy kids.
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Flying the flag for WA research thanks to Business Events Aspire AwardsDr Matthew ‘Tepi’ Mclaughlin is the 2022 The Kids Research Institute Australia Aspire Award winner - coordinated by Western Australia’s peak body for business events, Business Events Perth.
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State Government boost for vital child health researchEight The Kids Research Institute Australia-led projects will benefit from a Western Australian Government boost to health research for the State’s children and young people.
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The Impact of Poverty - interview with Steve ZubrickGrowing up poor is about more than just the size of your bank account. Read the new CoLab Impact of Poverty Evidence Report.
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$1.2million in funding secured for two innovative projectsThe Kids researchers are collaborating on two major projects that today received $1.2million in funding from MTPConnect.
Research
Follow-up and Outcomes of Infants Perinatally-exposed to HIV in a Low-prevalence Setting: The Multicenter Children's HIV Exposure Study 2To investigate the follow-up and outcomes of HIV-exposed infants in a setting of low HIV prevalence. This was a multicenter, retrospective study of live-born infants of women known to be living with HIV, at 9 tertiary pediatric centers in Australia and New Zealand from 2009-2025. Antenatal, perinatal, and postnatal data, and outcomes at clinic visits to 18 months of age were collected, including co-morbidities, development, and HIV results.
Research
What is it like living with X-linked hypophosphatemia?: results from an Australian consumer surveyX-linked hypophosphatemia (XLH) is a rare, X-linked dominant condition with a high burden of both physical and psychosocial disease. This study aimed to describe the experience and burden of disease for children and adults living with XLH in Australia by inviting affected individuals and their carers to complete an online questionnaire. Of the 46 responses, half were completed by a person with XLH, and half by carers. Thirty percent were male, 33% were aged less than 18 yr.
News & Events
National honour for consumer advocateAnne MacKenzie has been recognised with the award of Member of the Order of Australia (AM).
News & Events
Funding boost for ORIGINS child and family health researchORIGINS is celebrating a substantial funding increase for its world-class research into child and family health and wellbeing.