Skip to content

Search

Caregivers' Perceptions of Clinical Symptoms, Disease Management, and Quality of Life Impact in Cases of Cyclin-Dependent Kinase-Like 5 Deficiency Disorder: Cross-Sectional Online Survey

Cyclin-dependent kinase-like 5 (CDKL5) deficiency disorder (CDD) is an ultrarare genetic condition causing developmental epileptic encephalopathy characterized by seizures and motor and intellectual disabilities. No disease-modifying therapies are available, and treatments focus mainly on symptom management to improve quality of life.

Health behaviour change: Theories, progress, and recommendations for the next generation of physical activity research

Adaptive behaviour change is central to improving population health, yet poor adoption of health-enhancing behaviours contributes to noncommunicable diseases and so remains a global concern. Research on physical activity behaviour change has continued to expand and evolve since the turn of the millennium, guided by diverse theoretical approaches-from social cognitive theories, organismic dialectical approaches such as Self-Determination Theory, dual-process frameworks, and integrated practical models and taxonomies.

The Causal Effect of Parent–Child Interactions on Child Language Development at 3 and 4 Years

Language development is critical for children's life chances. Promoting parent-child interactions is suggested as one mechanism to support language development in the early years. However, limited evidence exists for a causal effect of parent-child interactions on children's language development.

Meningococcal Disease

Meningococcal disease is caused by the bacteria Neisseria meningitidis, or 'meningococcus'. It is an uncommon but very serious disease that can result in death if not recognised and treated quickly.

Perseverance pays off for critically ill patients

A legal change fought for by The Kids, consumer advocates, and others within the health sector – and hastened by the COVID-19 crisis – has brought WA into line with the rest of Australia, allowing critically ill or incapacitated patients access to potentially life-saving clinical trials.

Trial aims to improve survival rates for kids with brain cancer

An international clinical trial led by The Kids Research Institute Australia Cancer Centre is trialling a drug which could increase cure rates for aggressive forms of childhood brain cancer.

Setting new standards for lung health

A global network of researchers and clinicians, co-led by The Kids’ Professor Graham Hall, has transformed international best practice in identifying low lung function and diagnosing and treating lung disease.

The endgame strategy to eliminate deadly heart disease

Five years of intensive collaboration between researchers, clinicians, Aboriginal Community Controlled Health Organisations, and government and non-government organisations have finally put the long-fought for goal of ending RHD within reach.

Communications science to shift public thinking

Despite major advances in science in recent years, many Australians still don't understand the magnitude and importance of early years development to a child's life journey.

Counting the cost of late intervention

Leaders in the not-for-profit, research, philanthropy and business sectors have joined forces to shine a light on the human and economic benefits of early support for Australian children.