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News & Events

Important clinic update

There is lots of news to report from the clinic including holiday shutdown dates, appointment scheduling, staff updates, and more.

Your impact

Ever wondered just what your gift means to us? Here's a snapshot.

News & Events

Time for WA’s ‘wait awhiles’ to get vaccinated

Researchers leading a study into COVID-19 vaccine hesitancy say a sub-group of people they’ve dubbed the ‘wait awhiles’

Research

The application of population data linkage to capture sibling health outcomes among children and young adults with neurodevelopmental conditions. A scoping review

Siblings of children with neurodevelopmental conditions have unique experiences and challenges related to their sibling role. Some develop mental health concerns as measured by self-reported surveys or parent report. Few data are available at the population level, owing to difficulties capturing wide-scale health data for siblings. Data linkage is a technique that can facilitate such research. 

Research

The natural history of the MECP2 Duplication disorder: Australian surveillance and plans for development of an international register

Helen Jenny Leonard Downs MBChB MPH BApplSci (physio) MSc PhD Principal Research Fellow Head, Child Disability +61 419 956 946 08 6319 1763

News & Events

Consumer Representative Spotlight

Jo Lester, DiabHQ Steering Committee Member

News & Events

Zandyn's story

Having diabetes is hard and that's why our researchers are working tirelessly to develop more effective therapies to improve the lives of those living with T1D

Project Coordinator PrEggNut

Childhood Allergy and Immunology Team - Project Coordinator PrEggNut

Family satisfaction following spinal fusion in Rett syndrome: a cohort study

This study evaluated sixty-one families' satisfaction following spinal fusion in girls with Rett syndrome.