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Research
Protocol For Study Of Information Needs Of Parents Of Infants Newly Diagnosed With Cystic FibrosisThis study aimed to investigate the information needs, priorities, and information-seeking behaviours of parents of infants newly diagnosed with CF.
Research
The effect of diesel exhaust exposure on blood-brain barrier integrity and function in a murine modelEpidemiological studies indicate that exposure to diesel exhaust (DE) is associated with vascular-based disorders.
News & Events
Time for WA’s ‘wait awhiles’ to get vaccinatedResearchers leading a study into COVID-19 vaccine hesitancy say a sub-group of people they’ve dubbed the ‘wait awhiles’
Research
The application of population data linkage to capture sibling health outcomes among children and young adults with neurodevelopmental conditions. A scoping reviewSiblings of children with neurodevelopmental conditions have unique experiences and challenges related to their sibling role. Some develop mental health concerns as measured by self-reported surveys or parent report. Few data are available at the population level, owing to difficulties capturing wide-scale health data for siblings. Data linkage is a technique that can facilitate such research.
Research
The natural history of the MECP2 Duplication disorder: Australian surveillance and plans for development of an international registerHelen Jenny Leonard Downs MBChB MPH BApplSci (physio) MSc PhD Principal Research Fellow Head, Child Disability +61 419 956 946 08 6319 1763
News & Events
Zandyn's storyHaving diabetes is hard and that's why our researchers are working tirelessly to develop more effective therapies to improve the lives of those living with T1D
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Childhood Allergy and Immunology Team - Project Coordinator PrEggNut
This study evaluated sixty-one families' satisfaction following spinal fusion in girls with Rett syndrome.