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Family resources

Rett Syndrome Association of Australia and ANZACRett are two family-oriented organisations.

Research

Bright Tomorrows Start Today (Parent App)

The Bright Tomorrows app developed at The Kids Research Institute Australia aims to assist parents of children aged 0-5 years to support their child to develop the building blocks of several essential life skills.

How to get active

Considering one’s own capacity, activity should be included into everyone’s daily routine to make sure these recommended levels of activity are being as closely met as possible, for everyone to secure the most benefits.

Toolkit of uptime strategies

Learn about a practical toolkit of strategies to maximize uptime for children with Rett Syndrome, promoting engagement and facilitating meaningful activities.

News & Events

The InterRett database: Looking back and looking forward. What we have done and can do with your involvement!

Click the photo below to download Dr Helen Leonard's online webinar hosted by Rettsyndrome.org.

News & Events

Meeting with families in China

Prof Helen Leonard and Dr Jenny Downs recently visited Shenzhen, China to meet Chinese families and child neurologists from the Shenzhen Children's Hospital.

Research

Centre of Linked Data Analytics and Social Policy (CLASP)

The Kids Research Institute Australia was awarded funding to establish a whole-of-state Centre of Linked Data Analytics and Social Policy.

Research

Characterising the development of molecular and hormonal circadian rhythm development in preterm infants

Jane Pillow BMedSci (Dist) MBBS, PhD (Dist) FRACP Head, Developmental Chronobiology jane.pillow@thekids.org.au Head, Developmental Chronobiology

Research

Chemosensitisation of medulloblastoma and pineoblastoma

Raelene Nick Endersby Gottardo BSc (Hons) PhD MBChB FRACP PhD Brainchild Fellow; Co-Head, Brain Tumour Research Head of Paediatric and Adolescent

Research

Child Development Services: What Matters To You?

Listening to children and families about what is important to them when visiting Child Development Services (CDS) can provide valuable insights.