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Participate in AussieRett

AussieRett is the Australian Rett syndrome research study. We collect information on Australian individuals with Rett syndrome from both families and clinicians

Participate in InterRett / MECP2 Duplication Research

Through InterRett we collect information on individuals with Rett syndrome on a global level. If you are a participant you can complete your questionnaire here.

Hybrid Closed Loop and Difficult Foods Study

Managing blood glucose levels with different foods can be challenging. Our research team would like to know how the hybrid closed loop system, deals with these foods, compared to standard pump therapy.

Identifying pediatric lung disease: A comparison of forced oscillation technique outcomes

Identifying pediatric lung disease: A comparison of forced oscillation technique outcomes Abstract Rationale Increasing evidence suggests the forced

Corporate partners

As a not-for profit child health research organisation we rely on the generosity of our partners, communities and supporters to improve the health, development and lives of children through excellence in research.

Annual Giving

Your generosity creates a significant impact on our research and on the lives of children everywhere

Mindful Self-Compassion for LGBTQ youth: a multi-site randomized controlled trial

Amy Penelope Yael Finlay-Jones Strauss Perry BPsych(Hons), MPsych(Clinical), MHealthEcon, PhD (Clin Psych) BA, MPH, PhD BPsych (Hons) MPsych (Clin)

Our popular workshops are back these school holidays

Our popular workshops for kids are back these school holidays and we have a jam-packed program full of fun and engaging science activities!

Neighborhood Places for Preschool Children's Physical Activity: A Mixed-Methods Study Using Global Positioning System, Geographic Information Systems, and Accelerometry Data

This study adds to the current literature by using a novel device-based method to explore where preschool children are physically active outside of home and childcare settings. This study combined accelerometry with geospatial data to explore the influence of the environment on preschool children's physical activity by objectively identifying the locations where preschool children engage in moderate to vigorous physical activity (MVPA) within and outside of their neighborhood.

Understanding the Determinants of Use of the Australian Guide to Diagnosis of Fetal Alcohol Spectrum Disorder: Informing the Review, Development and Dissemination

The Australian Guide to the Diagnosis of fetal alcohol spectrum disorder (FASD), developed in 2016, is currently under review. This study aimed to understand how the Guide is used in practice and identify factors influencing its implementation.