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Level of purposeful hand function as a marker of clinical severity in Rett syndrome

We developed a measure of hand function, and then investigated relationships between hand function, type of MECP2 mutation, age and severity of symptoms.

Resources

These resources include the best available evidence about the course of Rett syndrome and its management as well as practical information about family associations, specialist clinical centres and links to relevant websites.

Family resources

Rett Syndrome Association of Australia and ANZACRett are two family-oriented organisations.

Participate in AussieRett

AussieRett is the Australian Rett syndrome research study. We collect information on Australian individuals with Rett syndrome from both families and clinicians

Participate in InterRett / MECP2 Duplication Research

Through InterRett we collect information on individuals with Rett syndrome on a global level. If you are a participant you can complete your questionnaire here.

The Early Years Parent App Project

Are you pregnant, a parent or a carer of a child aged 0 to 8 years and live in Western Australia? Help us deliver a new early years app.

Our popular workshops are back these school holidays

Our popular workshops for kids are back these school holidays and we have a jam-packed program full of fun and engaging science activities!

Mindful Self-Compassion for LGBTQ youth: a multi-site randomized controlled trial

Amy Penelope Yael Finlay-Jones Strauss Perry BPsych(Hons), MPsych(Clinical), MHealthEcon, PhD (Clin Psych) BA, MPH, PhD BPsych (Hons) MPsych (Clin)

Don't Get Lost in Translation: Integrating Developmental and Implementation Sciences to Accelerate Real-World Impact on Children's Development, Health, and Wellbeing

Translation of developmental science discoveries is impeded by numerous barriers at different stages of the research-to-practice pipeline. Actualization of the vast potential of the developmental sciences to improve children's health and development in the real world is imperative but has not yet been fully realized.

Supporting Maternal and Child Mental Health Through Dietary Changes Focused on the Gut Microbiota

Growing evidence from preclinical studies, epidemiology, and randomized controlled trials supports a causal role for diet quality in mental disorder risk, and clinical psychiatric guidelines now place diet, along with other life-style behaviors, as foundational treatment targets for mood disorders.