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Impact of scoliosis surgery on daily living

We wanted to examine the effects of spinal fusion surgery to treat scoliosis on the functional abilities of girls and women with Rett syndrome.

Family resources

Rett Syndrome Association of Australia and ANZACRett are two family-oriented organisations.

How to get active

Considering one’s own capacity, activity should be included into everyone’s daily routine to make sure these recommended levels of activity are being as closely met as possible, for everyone to secure the most benefits.

Toolkit of uptime strategies

Learn about a practical toolkit of strategies to maximize uptime for children with Rett Syndrome, promoting engagement and facilitating meaningful activities.

News & Events

The InterRett database: Looking back and looking forward. What we have done and can do with your involvement!

Click the photo below to download Dr Helen Leonard's online webinar hosted by Rettsyndrome.org.

News & Events

Meeting with families in China

Prof Helen Leonard and Dr Jenny Downs recently visited Shenzhen, China to meet Chinese families and child neurologists from the Shenzhen Children's Hospital.

Research

Oral contraceptive use in girls and alcohol consumption in boys are associated with increased blood pressure in late adolescence

We aimed to assess the association of health behaviours with BP in adolescents, using data from the Western Australian Pregnancy (Raine) Study.

Research

Effectiveness and experiences of families participating in peer led parenting support programs

What is the effectiveness and experience of families participating in peer led parenting support programs delivered as home visiting programs?

Research

Micronutrient intakes from food and supplements in Australian adolescents

We assessed micronutrient intakes in adolescents to determine whether supplement use optimises intakes.

News & Events

Meet END RHD CRE Researcher Dr Simone Reynolds

Learn more about the background and motivations of END RHD CRE Research Fellow Simone Reynolds.