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Guide our sibling research!

We want to hear from siblings living outside of Australian cities!

Sibling Support and Teen Talk Studies form

The visual representation of Teen Talk study findings

The aim of this paper was to describe the meaning of wellbeing for children and youth with disabilities from their perspective.

Fourteen of 74 Chinese families known to the International Rett Syndrome Phenotype Database participated in this qualitative study.

The diagnosis of a rare disorder is dependent on the clinician's particular knowledge and experience, and can be challenging when the presentation is variable.

The purpose of this study was to describe qualitatively the experience of parenting for mothers of a child with Down syndrome and to explore spirituality.