Skip to content
The Kids Research Institute Australia logo
Donate

Discover . Prevent . Cure .

Search

Research

The measurement properties of tests and tools used in cystic fibrosis studies: a systematic review

There is no consensus on how best to measure responses to interventions among children and adults with cystic fibrosis (CF). We have systematically reviewed and summarised the characteristics and measurement properties of tests and tools that have been used to capture outcomes in studies among people with CF, including their reliability, validity and responsiveness. This review is intended to guide researchers when selecting tests or tools for measuring treatment effects in CF trials. A consensus set of these tests and tools could improve consistency in how outcomes are captured and thereby facilitate comparisons and synthesis of evidence across studies.

About

Learn more about the Wesfarmers Centre of Vaccines and Infectious Diseases

Current studies

To improve the health of the community through immunisation and prevention of infectious diseases, we are conducting clinical trials of vaccines.

RSV Study for Toddlers

Contact us If you'd like to get in touch, please contact us by phone or email. Phone: 0400 450 240 Email: vtg@telethonkids.org.au RSV is one of the

Allergy Prevention

Allergies have been on the rise in Australia over the past 20 years, with three out of every 10 babies born each year now developing a food-related

COVID-19

The year 2020 has been marked by possibly the greatest health challenge to face modern society. The emergence of COVID-19 as a novel human pathogen

Upcoming Studies 2021

Contact us If you'd like to get in touch, please contact us by phone or email. Phone: 0400 450 240 Email: vtg@telethonkids.org.au The Vaccine Trials

Cytomegalovirus (CMV)

Contact us If you'd like to get in touch, please contact us by phone or email. Phone: 0400 450 240 Email: vtg@telethonkids.org.au Finding a vaccine

Project governance

Māori and Pacific Governance groups were formed before the initiation of the study. They have continued to meet periodically to discuss and inform

News & Events

Hep C can be cured, but many people are still not being treated

People living with hepatitis C in WA are being urged to take part in a new project, aimed at encouraging the take-up of treatment.