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Research

Reliability and Validity of a Short Version of the General Functioning Subscale of the McMaster Family Assessment Device

The findings of this study support the use of a GF6+ subscale from the FAD, as a quick and effective tool to assess the overall functioning of families

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CAGE-defined promoter regions of the genes implicated in Rett Syndrome

A comprehensive picture of the regulatory regions of the three genes involved in Rett Syndrome

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Evaluating the capacity of Australian school staff to recognise and respond to cyberbullying behaviours

To prevent and manage students' cyberbullying, school staff must be aware of this behavior, be able to recognize it, and respond appropriately and skilfully.

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Scoping review of the literature about family-centred care with caregivers of children with cystic fibrosis

Need for research into family-centred caring as a way of caring for children and families where one or more of the children have cystic fibrosis

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'What women want': Using image theory to develop expectations of maternity care framework

Developing, in consultation with women, a theoretically-grounded framework to guide the assessment of women's maternity-care experiences.

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Experience of gastrostomy using a quality care framework: The example of rett syndrome

Gastrostomy assisted the management of feeding difficulties and poor weight gain, and was acceptable to families

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The trajectories of sleep disturbances in Rett syndrome

This paper demonstrated that the evolution of sleep problems differed between subgroups of girls and women with Rett syndrome, in part explained by age and...

Research

Resilience amongst Australian Aboriginal youth: An ecological analysis of factors associated with psychosocial functioning

We investigate whether the profile of factors protecting psychosocial functioning of high risk exposed Australian Aboriginal youth are the same as those...

Research

Clinical and demographic risk factors associated with mortality during early adulthood in a population-based cohort of childhood-onset Type 1 diabetes

This paper reports calculated standardized mortality ratios in patients with Type 1 diabetes, and assesses the association between poor management of...

Research

Fetal alcohol spectrum disorder: Development of consensus referral criteria for specialist diagnostic assessment in Australia

The use of standard methods to identify when to refer individuals who may have FASD for specialist assessment could help improve the identification of this...