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These resources include the best available evidence about the course of Rett syndrome and its management as well as practical information about family associations, specialist clinical centres and links to relevant websites.

Our Searchable online database allows you to create graphs like the one below.

Embrace the potential of children with Rett Syndrome by exploring how to plan opportunities for uptime, maximizing their engagement and participation in meaningful activities.

Our research team have done 4 studies to find out how to increase activity in children and adults with Rett syndrome.

AussieRett is the Australian Rett syndrome research study. We collect information on Australian individuals with Rett syndrome from both families and clinicians

Building leadership includes two modules you can access using the links below. What is leadership? Leadership is the ability to influence the way

Once we’ve explored what it looks like to be an effective cyber leader, we can then begin to think about the sort of impact we want to make. Without

The aim of every good leader is to make a positive change. It is often so easy to create lots of great ideas but how do we take that from a thought

News & Events

When Liana complained of a sore foot and showed signs of a fever, her mum Margie rushed her to hospital. An X-ray of her foot revealed no obvious injury, so she was sent home and advised to take painkillers.

News & Events

Welcome to the team Clinical Psychologist Registrar Shane Lay and Operations Manager Pip Comiskey, who has replaced Leah Meehan while she is on parental leave.