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Replication of rare aggressive brain cancer could pave the way for better treatments

In an Australian-first, The Kids Research Institute Australia researchers have developed a new tool that could improve outcomes for children with a highly aggressive type of brain cancer.

News & Events

World-first maps reveal how long it takes to reach healthcare from anywhere in the globe

New research which maps the entire global population’s travel time to their nearest healthcare facility has revealed major inequalities in access to healthcare depending on whether people have access to motorised transport or not.

News & Events

WA data crucial to key stillbirth finding

A 1970s initiative which saw midwives begin collecting key data about all births in Western Australia has been crucial to new findings about stillbirth.

News & Events

Embracing the mental health of our children and young people

Embrace – a new research collaboration based at The Kids – will bring a new focus to understanding and improving the mental health of children and young people.

Aspects of speech-language abilities are influenced by MECP2 mutation type in girls with Rett syndrome

This study explored relationships between speech and language abilities in girls with Rett syndrome and how they may be affected by the type of genetic mutation

Gastrointestinal dysmotility in Rett syndrome

We reviewed literature and RettNet to explore firsthand perspectives of gastrointestinal issues in Rett Syndrome, then developed recommendations with experts.

Conceptualizing a quality of life framework for girls with Rett syndrome using qualitative methods

We interviewed 21 families with a daughter with Rett Syndrome about aspects of their daughters' lives that were satisfying or challenging to them.

Longitudinal bone mineral content and density in Rett syndrome and their contributing factors

This study measured changes in bone density over time using dual energy x-ray absorptiometry (DEXA). Lean tissue or muscle mass (LTM) was also measured.

Using a large international sample to investigate epilepsy in Rett syndrome

Using a large sample size, we investigated the relationships between epilepsy and genotype, and the impact of medications used on seizure management.

Seizures in Rett syndrome: an overview from a one-year calendar study

We collected information on a monthly basis on the patterns of seizures and medications of 162 girls in the Australian Rett Syndrome study over a calendar year.