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Research
Barriers and Considerations for Diagnosing Rare Diseases in Indigenous PopulationsAdvances in omics and specifically genomic technologies are increasingly transforming rare disease diagnosis. However, the benefits of these advances are disproportionately experienced within and between populations, with Indigenous populations frequently experiencing diagnostic and therapeutic inequities. The International Rare Disease Research Consortium (IRDiRC) multi-stakeholder partnership has been advancing toward the vision of all people living with a rare disease receiving an accurate diagnosis, care, and available therapy within 1 year of coming to medical attention. In order to further progress toward this vision, IRDiRC has created a taskforce to explore the access barriers to diagnosis of rare genetic diseases faced by Indigenous peoples, with a view of developing recommendations to overcome them.
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Evaluation of a public education campaign to support parents to reduce adolescent alcohol useThe Parents, Young People and Alcohol campaign achieved high awareness and positively influenced parental outcomes
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Correlation of ultra-low dose chest CT findings with physiologic measures of asbestosisThis study aimed to determine the relationship between ULDCT-ILD and measures of pulmonary function in an asbestos-exposed population.
Research
Use of the Dietary Guideline Index to assess cardiometabolic risk in adolescentsThe long-term adherence to the dietary guidelines has not been evaluated against emergence of cardiometabolic risks in adolescents with increasing rates of...
Read about the management staff of the Children's Diabetes Centre, Dr Charles Czank and Nirubasini Paramalingam.
News & Events
Farewell TariniAfter nearly two-and-a-half years in sunny Perth, Dr Tarini Chetty is headed back home to Scotland. Before she departs our shores.
Research
Who suffered most? Parental stress and mental health during the COVID-19 pandemic in GermanyThis study examines gender and socioeconomic inequalities in parental psychological wellbeing (parenting stress and psychological distress) during the COVID-19 pandemic in Germany. Background: The dramatic shift of childcare and schooling responsibility from formal institutions to private households during the pandemic has put families under enormous stress and raised concerns about caregivers’ health and wellbeing.
Research
Questionnaires Measuring Physical Activity in Clinical Pediatric Populations: A Systematic ReviewRegular physical activity (PA) is a cornerstone therapy for many childhood chronic health conditions, and questionnaires offer a simple method for monitoring PA and identifying children who do not meet clinical practice guidelines. The purpose of this systematic review is to determine which questionnaires are most efficacious for assessing PA in children with chronic health conditions.
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Researching the researchers: psychological distress and psychosocial stressors according to career stage in mental health researchersAlthough there are many benefits associated with working in academia, this career path often involves structural and organisational stressors that can be detrimental to wellbeing and increase susceptibility to psychological distress and mental ill health. This exploratory study examines experiences of work-related psychosocial stressors, psychological distress, and mental health diagnoses among mental health researchers.
Research
ERS International Congress 2020 Virtual: highlights from the Allied Respiratory Professionals AssemblyThis article provides an overview of outstanding sessions that were (co)organised by the Allied Respiratory Professionals Assembly during the European Respiratory Society International Congress 2020, which this year assumed a virtual format. The content of the sessions was mainly targeted at allied respiratory professionals, including respiratory function technologists and scientists, physiotherapists, and nurses.