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Aboriginal Consultative Committee Advising Research and Evaluation (ACCARE)

ACCARE provides high level advice to the Institute's Director around strategic directions and operational elements relating to Aboriginal health research

Research

GAMA project

This study investigated host gene expression in response to new HIV infection.

Bright Tomorrows app offers families support during COVID-19

A comprehensive app produced by The Kids researchers has offered parents a lifeline as they try to cope with the isolation and disruption caused by coronavirus.

CliniKids puts the ‘evidence’ in evidence-based practice

Autism researchers at The Kids have led the most comprehensive review of the evidence for autism intervention ever compiled

Perseverance pays off for critically ill patients

A legal change fought for by The Kids, consumer advocates, and others within the health sector – and hastened by the COVID-19 crisis – has brought WA into line with the rest of Australia, allowing critically ill or incapacitated patients access to potentially life-saving clinical trials.

Autism guide makes art accessible for all

For children with Austin Spectrum Disorder (ASD), it can be hard to enjoy the simple pleasures of art, but the development of an ASD guide is helping to share the wonders of art with all.

Research

Beyond Seizures as an Outcome Measure: A Global Severity Scoring System for CDKL5 Deficiency Disorder

CDKL5 deficiency disorder (CDD) is a rare developmental and epileptic encephalopathy (DEE) associated with multiple impairments and comorbidities. Outcome measures for disease-modifying clinical trials for DEEs should measurably capture a spectrum of caregiver priorities and be externally validated.

Research

Psychometric validation of the quality of life Inventory − Disability (QI-Disability) among patients with Lennox-Gastaut syndrome and Dravet syndrome

To evaluate the psychometric properties of the Quality of Life Inventory -Disability (QI-Disability) for individuals with Dravet syndrome (DS) or Lennox-Gastaut syndrome (LGS), two rare developmental and epileptic encephalopathy conditions.

Research

A meta-analytic review and conceptual model of the antecedents and outcomes of goal adjustment in response to striving difficulties

There is growing interest in how and why individuals adjust their goals in response to difficulties encountered during goal striving and the outcomes of such adjustments; however, research on these topics is fragmented across theoretical perspectives and life domains.