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Research

Rare disease education in Europe and beyond: time to act

People living with rare diseases (PLWRD) still face huge unmet needs, in part due to the fact that care systems are not sufficiently aligned with their needs and healthcare workforce (HWF) along their care pathways lacks competencies to efficiently tackle rare disease-specific challenges. Level of rare disease knowledge and awareness among the current and future HWF is insufficient.

Research

Wongi mi bardup (doing it our way): Methodologies promoting Aboriginal knowledges and cultural practices for Birthing on Noongar Boodjar

This paper sets out the methodological and theoretical considerations which framed how the Birthing on Noongar Boodjar project was conducted

Research

Assessing Diversity in Early Childhood Development in the East Asia-Pacific

In all six countries, child development scores increased with age and urban children consistently performed better than rural children

Research

The Deep Genome Project.

The Deep Genome Project—to deliver the functional biological annotation of all human orthologous genomic elements in mice

Research

Culturally competent communication in Indigenous disability assessment: a qualitative study

Indigenous people tend to exhibit a higher burden of disability than their non-Indigenous counterparts, and are often underserved by disability services. Engaging appropriately with Indigenous communities, families and individuals in the initial stages of disability assessment and planning is crucial in order to build trust and understanding of disability service models and ensure that Indigenous people receive support that is tailored to their needs and cultural realities. This article aims to identify key elements of culturally competent communication in Indigenous disability assessment and planning, and provide recommendations for strengthening capacity in this area.

Research

Evaluation of protocol amendments to the Environmental Determinants of Islet Autoimmunity (ENDIA) study during the COVID-19 pandemic

Liz Davis MBBS FRACP PhD Co-director of Children’s Diabetes Centre Co-director of Children’s Diabetes Centre Professor Davis is a paediatric

Research

A psychometric examination of a modified eight-item version of the children's eating disorder examination

Furthermore, previous studies suggest that scores obtained from a simplified 8-item version of the ChEDE may be more reliable and useful for research...

Research

Multi-modality monitoring of cystic fibrosis lung disease: the role of chest computed tomography

Stratification of monitoring protocols based on the risk profile of the patient can help us in the future to better care for people with Cystic Fibrosis.

Research

The impact of expanding access to early childhood education services in rural Indonesia.

This article examines the relationship between preschool quality and children’s early development in a sample of over 7900 children enrolled in 578 preschools in rural Indonesia.

Research

The gap in life expectancy from preventable physical illness in psychiatric patients in Western Australia

Despite knowledge about excess mortality in people with mental illness, the gap in their life expectancy compared with the general population has widened...