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Big run ends, race for cure continuesOur local legend, brain cancer researcher Jacob Byrne, has crossed the finish line of his final marathon, completing his Big Run for Little Brains - 30 marathons in 30 days, covering 1266km across Perth’s local government areas.
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Researchers at The Kids push back against claims linking paracetamol to autismResearchers at The Kids Research Institute Australia have pushed back against claims by US President Donald Trump linking paracetamol use during pregnancy to autism.
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CF Awareness MonthInformation about cystic fibrosis awareness month and CF research at The Kids
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Empowering parents: ORIGINS secures MRFF grant to develop early childhood flourishing toolORIGINS sub-project, The Flourishing Child, has received a $746,051 grant from the Medical Research Future Fund to develop a Flourishing Assessment and Pathway Tool to address gaps in early intervention for children's mental health.
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Families shape future of Down syndrome careA collaborative study between UWA, Perth Children’s Hospital, The Kids and advocacy and support group Down Syndrome WA, has identified the top priorities, according to patients and carers, for clinical care and research for children with the genetic cond
We developed recommendations to assess and manage issues relating to poor growth and weight gain in Rett syndrome, including consideration of gastrostomy.
We investigated our data from family questionnaires to see how feeding difficulties related to age, the type of MECP2 mutation, and the use of gastrostomy.
We developed a measure of hand function, and then investigated relationships between hand function, type of MECP2 mutation, age and severity of symptoms.
We investigated what parents thought about the ways to manage scoliosis and what they thought they needed to help them better manage their daughter's scoliosis.
When you build routines into your day to increase uptime, it doesn’t only affect the person with Rett syndrome; it affects the whole family.