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News & Events

Big run ends, race for cure continues

Our local legend, brain cancer researcher Jacob Byrne, has crossed the finish line of his final marathon, completing his Big Run for Little Brains - 30 marathons in 30 days, covering 1266km across Perth’s local government areas.

News & Events

Researchers at The Kids push back against claims linking paracetamol to autism

Researchers at The Kids Research Institute Australia have pushed back against claims by US President Donald Trump linking paracetamol use during pregnancy to autism.

News & Events

CF Awareness Month

Information about cystic fibrosis awareness month and CF research at The Kids

News & Events

Empowering parents: ORIGINS secures MRFF grant to develop early childhood flourishing tool

ORIGINS sub-project, The Flourishing Child, has received a $746,051 grant from the Medical Research Future Fund to develop a Flourishing Assessment and Pathway Tool to address gaps in early intervention for children's mental health.

News & Events

Families shape future of Down syndrome care

A collaborative study between UWA, Perth Children’s Hospital, The Kids and advocacy and support group Down Syndrome WA, has identified the top priorities, according to patients and carers, for clinical care and research for children with the genetic cond

Assessment and management of nutrition and growth in Rett syndrome

We developed recommendations to assess and manage issues relating to poor growth and weight gain in Rett syndrome, including consideration of gastrostomy.

Experience of gastrostomy using a quality care framework: The example of Rett syndrome

We investigated our data from family questionnaires to see how feeding difficulties related to age, the type of MECP2 mutation, and the use of gastrostomy.

Level of purposeful hand function as a marker of clinical severity in Rett syndrome

We developed a measure of hand function, and then investigated relationships between hand function, type of MECP2 mutation, age and severity of symptoms.

Parental experiences of scoliosis management

We investigated what parents thought about the ways to manage scoliosis and what they thought they needed to help them better manage their daughter's scoliosis.

Caring for caregivers

When you build routines into your day to increase uptime, it doesn’t only affect the person with Rett syndrome; it affects the whole family.