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Research
Rare disease education in Europe and beyond: time to actPeople living with rare diseases (PLWRD) still face huge unmet needs, in part due to the fact that care systems are not sufficiently aligned with their needs and healthcare workforce (HWF) along their care pathways lacks competencies to efficiently tackle rare disease-specific challenges. Level of rare disease knowledge and awareness among the current and future HWF is insufficient.
Research
Evaluation of protocol amendments to the Environmental Determinants of Islet Autoimmunity (ENDIA) study during the COVID-19 pandemicLiz Davis MBBS FRACP PhD Co-director of Children’s Diabetes Centre Co-director of Children’s Diabetes Centre Professor Davis is a paediatric
News & Events
Online safety for under 5'seSafety Early Years program and resources -tips to support children and families in online safety
News & Events
Setting smart phone rulesMobile phones are an important part of diabetes management but its also important to set some family rules for your child's technology use.
News & Events
T1D Mobile Health AppT1D Mobile Health App It is important for people living with type 1 diabetes (T1D) to engage in a physically active lifestyle, but it can be
News & Events
2018 workshop recapThe Children’s Diabetes Centre’s (CDC) annual workshop provided a great opportunity for diabetes researchers to get together in the one venue to showcase their work recently.
News & Events
Can protein lower the risk of hypos after exercise?Participants are needed for a new study looking at whether protein after exercise can decrease the risk of delayed low blood glucose levels after exercise.
News & Events
Unwanted devices?The PMH Diabetes and Endocrinology clinic is seeking donations of old Apple and android devices to pass on to families for CGM.
News & Events
2016 Events CalendarFind all the events the Children's Diabetes Centre have scheduled for 2016.
Research
Culturally competent communication in Indigenous disability assessment: a qualitative studyIndigenous people tend to exhibit a higher burden of disability than their non-Indigenous counterparts, and are often underserved by disability services. Engaging appropriately with Indigenous communities, families and individuals in the initial stages of disability assessment and planning is crucial in order to build trust and understanding of disability service models and ensure that Indigenous people receive support that is tailored to their needs and cultural realities. This article aims to identify key elements of culturally competent communication in Indigenous disability assessment and planning, and provide recommendations for strengthening capacity in this area.