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Research

Updates in infant acute lymphoblastic leukemia and the potential for targeted therapy

Outcomes for infants diagnosed under 1 year of age with KMT2A-rearranged acute lymphoblastic leukemia (ALL) have remained stagnant over the past 20 years. Successive treatment protocols have previously focused on intensification of conventional chemotherapy, but increased treatment-related toxicity and chemoresistance have led to a plateau in survival.

Research

Long-term medical and psychosocial outcomes in congenital diaphragmatic hernia survivors

Survivors of CDH may have significant adverse long-term medical and psychosocial issues that would be better recognised and managed in a multidisciplinary clinic

News & Events

Exercise and hypo awareness study

Our researchers want to assess whether a home-based program of either low-intensity or intermittent high-intensity exercise can improve the ability to feel hypo symptoms in individuals (14-35 years) with impaired hypoglycaemia awareness.

Research

Early lung surveillance of cystic fibrosis: what have we learnt?

Newborn screening (NBS) for cystic fibrosis (CF) provides an opportunity to commence management and therapeutic interventions significantly earlier

News & Events

Community conversations begin on wellbeing project

Embrace researchers and community members held conversations on the mental health and wellbeing of young people with type 1 diabetes.

News & Events

Clinic update - December 2023

There is lots of news to report from the clinic including holiday shutdown dates, appointment scheduling, staff updates, changes to creche, and service availability.

News & Events

Congratulations Dr Anna Boggiss

Anna has been awarded a three-year Fellowship to tackle the urgent gap in care in young Western Australians living with type 1 diabetes who are at heightened risk of developing eating disorders.

News & Events

Aussies publish first RCT of hybrid closed loop systems

A world-first clinical trial has shown young people with type 1 diabetes have better glycaemic control and quality of life while on hybrid closed loop (HCL) systems versus conventional treatments, Australian endocrinologists say.

Report: Pathways of young people in contact with multiple government agencies in Western Australia

Findings of a research study examining the characteristics of service use by a cohort of young people born between 1994-1997 who used four government services.

RHYME study

Contact us If you'd like to get in touch, please contact us by phone or email. Phone: 0400 450 240 Email: rhyme@telethonkids.org.au Background The