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Research
The Global Lung Initiative 2012 reference values reflect contemporary Australasian spirometryWe aimed to ascertain the fit of the European Respiratory Society Global Lung Initiative 2012 reference ranges to contemporary Australasian spirometric data.
Research
Early lung surveillance of cystic fibrosis: what have we learnt?Newborn screening (NBS) for cystic fibrosis (CF) provides an opportunity to commence management and therapeutic interventions significantly earlier
News & Events
Exercise and hypo awareness studyOur researchers want to assess whether a home-based program of either low-intensity or intermittent high-intensity exercise can improve the ability to feel hypo symptoms in individuals (14-35 years) with impaired hypoglycaemia awareness.
News & Events
Clinic update - December 2023There is lots of news to report from the clinic including holiday shutdown dates, appointment scheduling, staff updates, changes to creche, and service availability.
News & Events
Community conversations begin on wellbeing projectEmbrace researchers and community members held conversations on the mental health and wellbeing of young people with type 1 diabetes.
Imagine you had a healthy daughter one day and the next being told she has an incurable condition that requires day-to-day care and insulin treatment to stay alive.
Research
Updates in infant acute lymphoblastic leukemia and the potential for targeted therapyOutcomes for infants diagnosed under 1 year of age with KMT2A-rearranged acute lymphoblastic leukemia (ALL) have remained stagnant over the past 20 years. Successive treatment protocols have previously focused on intensification of conventional chemotherapy, but increased treatment-related toxicity and chemoresistance have led to a plateau in survival.
Research
Long-term medical and psychosocial outcomes in congenital diaphragmatic hernia survivorsSurvivors of CDH may have significant adverse long-term medical and psychosocial issues that would be better recognised and managed in a multidisciplinary clinic
One hundred years after the discovery of insulin, technology advancements are being heralded as the dawn of a new era for managing type 1 diabetes (T1D) in young people.
Research
Culturally competent communication in Indigenous disability assessment: a qualitative studyIndigenous people tend to exhibit a higher burden of disability than their non-Indigenous counterparts, and are often underserved by disability services. Engaging appropriately with Indigenous communities, families and individuals in the initial stages of disability assessment and planning is crucial in order to build trust and understanding of disability service models and ensure that Indigenous people receive support that is tailored to their needs and cultural realities. This article aims to identify key elements of culturally competent communication in Indigenous disability assessment and planning, and provide recommendations for strengthening capacity in this area.