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To coordinate and monitor clinical trial sites with the aim of meeting protocol and good clinical practice requirements.
The Wesfarmers Centre has established the Deborah Lehmann Research Award to acknowledge the significant contribution that Clinical Associate Professor Deborah Lehmann AO has made to paediatric infectious disease research.
Rett syndrome is a rare but serious neurological disorder that affects about 1 in 9,000 girls. Even more rarely, boys may be affected.
News & Events
T1D Telethon ChampionWe are proud to have so many very talented and passionate children and youth in our T1D community.
News & Events
CGM and exercise trialChildren with Type 1 Diabetes (aged eight to 12 years) are needed for a new trial into Continuous Glucose Monitoring (CGM) and exercise.
Research
Validation of the Dutch version of the Multidimensional Adolescent Functioning Scale (MAFS)The Multidimensional Adolescent Functioning Scale (MAFS) is a 23-item, self-report questionnaire assessing psychosocial functioning in adolescents aged 12-17 years. It captures three domains of functioning: 'general functioning', 'family-related functioning', and 'peer-related functioning'. The original English version has good psychometric properties. The aim of the current paper was to translate the MAFS to Dutch and to investigate the psychometric properties of this translation.
Research
Small-area geographical variation in the prevalence of diabetes amongst Australian youth aged <20 years in 2021To characterise small-area geographical variation in the prevalence of diabetes in Australian youth. A combined statistical reconstruction and small-area estimation algorithm was applied to privacy-modulated data from the 2021 Australian Census.
Research
Development of the Consumer Involvement & Engagement Toolkit: a digital resource to build capacity for undertaking patient-centred clinical trials in AustraliaThis paper describes the novel approach to developing a toolkit to support meaningful consumer involvement in clinical trials in Australia to help guide others in considering the development of similar resources.The toolkit aims to support greater consumer involvement in shaping how clinical research is prioritised, designed and conducted. Type of program or service: A working group of researchers, research organisations and consumers was established to co-develop the Consumer Involvement and Engagement Toolkit (the 'Toolkit'), a digital resource to guide researchers and organisations regarding consumer involvement in clinical trials.
Research
Hypersensitivity: ImmunologicalThis comprehensive review provides an introduction to immunological hypersensitivity, discusses the sensitisation of T-cell lineages.