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This study used information from international Rett syndrome database to investigate the relationship between clinical characteristics and different mutations.

Funded by the International Rett Syndrome Foundation, this international online database examines the clinical features and genetic characteristics.

AussieRett is the Australian Rett syndrome research study. We collect information on Australian individuals with Rett syndrome from both families and clinicians

These resources include the best available evidence about the course of Rett syndrome and its management as well as practical information about family associations, specialist clinical centres and links to relevant websites.

Our Searchable online database allows you to create graphs like the one below.

Our research team have done 4 studies to find out how to increase activity in children and adults with Rett syndrome.

Embrace the potential of children with Rett Syndrome by exploring how to plan opportunities for uptime, maximizing their engagement and participation in meaningful activities.

Learn more about the Wesfarmers Centre of Vaccines and Infectious Diseases

Meet our survey team and our survey reference group

Contact us If you'd like to get in touch, please contact us by phone or email. Phone: 0400 450 240 Email: vtg@telethonkids.org.au RSV is one of the