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Discover the news and events of the Rett syndrome and related disorders team, and find out what the team is working on in the fields of children disorders.
News & Events
HBF Run for a Reason 2014On Sunday May 25th, the 'I love someone with Rett syndrome' team participated in the annual HBF Run for a Reason.
News & Events
"You can't stop loving them" - a grandmother's story about her granddaughter who has Rett syndromeYou can't stop loving them: the gift of a grandchild can sometimes be painful, writes Wendy Macklin.
News & Events
The Rett Syndrome Journey: Pathways to FollowOur InterRett team visited Geelong, Australia to attend the first ever Rett Syndrome Association of Australia national conference.
Friendly Schools is the first Social and Emotional Wellbeing and Anti-bullying Initiative for schools developed through extensive research with Australian children and adolescents.
Research
Defining the microbes in the middle ear and upper respiratory tract that lead to recurrent ear infections – a metagenomic studyUsing the latest sequencing technology to examine the microbial composition of the middle ear & nasopharyngeal region, the site of initial colonization of OM
Parents and carers reported on the health, school, telephone counselling and online services used by young people, as well as any medication taken.
Watch videos from the Young Minds Matter team
If you have any concerns, you can visit your GP or contact Lifeline, beyondblue, Kids' Helpline, headspace, Reach Out or Relationships Australia.
Research
SeqNextGen: Translating NextGen Sequencing for the Diagnosis of Developmental Anomalies and Rare DiseasesDevelopment and implementation of a person-centric Model of Care for people living with developmental anomalies and rare diseases in Western Australia.