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News and events

Discover the news and events of the Rett syndrome and related disorders team, and find out what the team is working on in the fields of children disorders.

News & Events

HBF Run for a Reason 2014

On Sunday May 25th, the 'I love someone with Rett syndrome' team participated in the annual HBF Run for a Reason.

News & Events

"You can't stop loving them" - a grandmother's story about her granddaughter who has Rett syndrome

You can't stop loving them: the gift of a grandchild can sometimes be painful, writes Wendy Macklin.

News & Events

The Rett Syndrome Journey: Pathways to Follow

Our InterRett team visited Geelong, Australia to attend the first ever Rett Syndrome Association of Australia national conference.

Service use

Parents and carers reported on the health, school, telephone counselling and online services used by young people, as well as any medication taken.

Videos

Watch videos from the Young Minds Matter team

Need help?

If you have any concerns, you can visit your GP or contact Lifeline, beyondblue, Kids' Helpline, headspace, Reach Out or Relationships Australia.

The PRIME Study

Vaccine Trials Group with Sir Charles Gairdner Hospital is conducting a trial of a vaccine against Clostridium difficile infection (CDI) in at-risk individuals.

FluBub Study

The FluBub Study aims to learn more about the safety and effectiveness of giving the influenza vaccine to younger babies and providing them with much-needed protection earlier in life.

RSV

Contact us If you'd like to get in touch, please contact us by phone or email. Phone: 0400 450 240 Email: vtg@telethonkids.org.au Respiratory